Poignant Moments...A Caregiver's Perspective

Dialysis patient and author Jurgen Hesse says, Poignant Moments…A Caregiver’s Perspective “. . . is the kind of moving story that cannot be told enough times.” Many people unfortunately do not understand dialysis, but all know that we have kidneys.

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Location: Attleboro, Massachusetts, United States

Thursday, November 24, 2005

Yes! I have read it - …it is a most fitting tribute to Lois and something I know she would be so proud of… you for writing .... and, though it is her story, it is so much yours too. Though I appreciate the word '... Caregiver...' in your title, you - and so many others like you - are so much more than that. The spouse, the children, the parents and the friends of patients with chronic kidney disease and dialysis-dependence ride its emotional rollercoaster as much (and often more so) than the patient him/herself. Yet too little time is spent, too little recognition is given by the me's' of this world - the health professionals - who concentrate on the disease but are often blinded to the ways it affects those who love and care yet feel so helpless. From a practical - and selfish - point of view, I welcome your support of home therapies. Why so many should fear home dialysis and think it impossible defeats me sometimes. Still, lets still battle on - we small voices of reason - lets not forget that nearly 100 years ago they nearly turned the Titanic. Maybe now, we can put in that little extra bit of oomph to do it. John, it is a beautiful work. It put me in mind of one of the 1st books I read as a renal registrar back in 1974 about renal disease and dialysis - which I pull from the shelf as I type to remind myself (again) of the early days - The Courage to Fail: by Renee Fox and Judith Swazey. So much then was different - yet how the same. At the end, the same dilemmas, the same uncertainties, the same hope before anguish. Yet again, I am brought back to earth with a jolt. You have dealt with horror yet how well you have softened its edges with humour and empathy. Well done. you had the courage to tell us what many of us need to be reminded - what it must be like to be feel helpless yet to be the only true and immediate help: what it must be like to need to cheer when feeeling cheerless: what it must be like to see someone you love physically struggle when so strong yourself. These are things we, who work with those who are chronically ill, need so much to be reminded of - now and then. Thanks for the reminding. John Agar Professor John Agar, MBBS, FRACP, holds the title of Director of Nephrology, Barwon Health, Department of Renal Medicine, The Geelong Hospital, Geelong, Victoria, Australia. He is also the Chief of Medicine at Barwon Health, a senior transplant physician at the Transplant Clinic, St. Vincent's Hospital, Melbourne, and a Clinical Associate Professor of Medicine, University of Melbourne

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Anonymous Anonymous said...

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